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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Hi just got home at 8pm have finished the 2nd infusion , should of been home couple of hours earlier but when the nurse went to get the Rituximab she noticed a small hole in the bag, so it had to get thrown away and they had to make a new one for me, the nurse said thats £10,000 pounds down the drain ! so all this delayed the treatment, they also went slower ( every hour hour they speed up the drops usually ) as i had had a reaction the last time but thankfully every thing went well, so happy its all done Sophie x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hello Sophie hope you get good sleep now after all that gosh hole in bag.hope it works wonders for you hun do they give piroton with it to minimise reaction.thinking of you. hugs melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Sophie,
So glad it went well for you , good job they noticed the hole , it would have been contaminated. What a waste! Hope you have a good night.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Thanks Mel and Doreen, yes Mel they give piriton and paracetamol and a large bag of steroid infusion first, thats what they said Doreen it could been contaminated.
Sophie x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009 Posts: 585
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Hi Sophie I am so glad it went well for you I noticed with my second one I had a job to fall asleep so stayed up watching what I wanted to on the tv I even had the remote control to my self hope it works for you soon take care Mary L
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hi aww thats good piriton and pain relief steriod,bless glad they noticed wouldnt want contaminated infusion. take care hugs melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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So pleased it went well eventually, Sophie. What a waste though!
Take care
Love Jeanxxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 89 Location: Braintree, Essex
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Gosh you think they would be more carefull with our expensive drugs  glad they noticed before hand, hope you feel the bennifits a.s.a.p love corinne xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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rtx is a lot cheaper than that- it is only £500 a bag, its the anti tnfs that are the thousands. anyway- what a faff! hope you are not too groggy today love jenni xx how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Yes Mary i was up till 2.30am, it was the nurse who said it to me Jenni , ive just looked it up on the computer and it says £4,900 so maybe she means for the two treatments you have two weeks apart,
Sophie x
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Sophie Really good to hear all went well for you yesterday Hope you have a good day. Julia xx
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Sophie
So glad that you are feeling so much b etter - magic
I had no idea that the drugs were so expensive. How often do you had the infusion is it every 2 weeks, monthly ?
Good luck
Rose
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Well done, Sophie, so glad to hear it went well.
Love,
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Sophie, Glad things went well at your infusion. Good job the nurse noticed the hole - regardless of price, what a waste! Take care, Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Thanks ladies, Rose its two infusions 2 weeks apart that is classed as 1 go , this is my second go of Rituximab the first one was last November so hopefully i will get a year or more out of this  , i agree Kathleen how much must be waisted per day on the NHS, they thought the bag might have had the hole in it before they put the Rituximab in it in the lab. i have a lovely tomato colored face and neck Sophie x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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I was up the hospital today and I asked the nurse how much a bag of RTX was and like your nurse said that it was the same as your nurse says- £10000 I said, I dont think it is that much according to the rheumatologist and she printed this off to show me. http://www.nice.org.uk/n...a/pdf/TA126guidance.pdf
"2.3 The cost to the NHS of 100-mg and 500-mg vials of rituximab is £174.63 and £873.15 respectively, excluding VAT (‘British national formulary [BNF]’ 53). The cost of a single course of rituximab is £3492 (two 1000-mg i/v infusions). However, costs may vary in different settings because of negotiated procurement discounts." Compared to: Adalimumab 40 mg; fortnightly £9,295 Etanercept 25 mg; twice weekly £9,295 Infliximab 3 mg/kg; weeks 0, 2 and 6, then every 8 weeks administered as day case (costed as national tariff for inflammatory spine, joint or connective tissue disorder [H26] uplifted for national average market forces factor) £13,338 (+ £6,156 for loading doses)* Infliximab 3 mg/kg; weeks 0, 2 and 6, then every 8 weeks administered as outpatient (costed as national tariff for rheumatology follow-up outpatient uplifted for national average market forces factor) £8,905 (+ £4,110 for loading doses)* From (http://www.nice.org.uk/nicemedia/pdf/Rheumatoidarthritisfirstuseadalimumabetanerceptinfliximabcostingstatement.pdf) They use a heck of a lot of it here in Southampton so wouldnt be surprised if they are getting RTX for £500 rather than the 873.15 per infusion. Bearing in mind that it is only a couple of times a year it is a LOT cheaper than a lot of the other biologics. Jenni x how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Sophie hun you ok, said face neck very red hugs to you 2.30am bless you must be exhausted gentle hugs. cost is nothin for a better quality life top discease management for u hey hun. im so lad youve been given chance try it so hope does wonders for you hun. much lv thinking of you. melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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Hi Sophie, Glad it went well! I'm hoping to have my second course of Rituximab next month and my rheummy has said that the drug usually is more effective the second time around. Here's hoping you won't be costing the NHS another £xxx for RTX for ages and ages! Joanna
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Hi Sophie - glad it went well and hope it works it's magic.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Thanks ladies, i agree Mel cost is nothing for a better quality of life, Joanna i hope your next round of Rituximab works wonders for you, Julie how are you doing ? bet you can not wait for next week, are you off with Jimmy ?
Sophie x
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